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post lymphoma BMT diagnosis of MDS

This topic has 5 replies, 1 voice, and was last updated 16 years, 3 months ago by LarryCA.

Viewing 6 posts - 1 through 6 (of 6 total)

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January 2, 2008 at 5:02 am #19940

carolyn m
Member

My husband (69) has just been diagnosed with MDS. In 2004 he underwent chemo for non-hodgkins lymphoma, followed by BMT in 2005. He has been in remission until this new diagnosis last month. We were told the MDS is a likely consequence of his chemo (he also had major heart failure from his chemo). I would like to hear of any other similiarly caused MDS cases and how this type of history may affect prognosis.

January 2, 2008 at 1:33 pm #19941

Zoe
Member

Welcome Carolyn! It may be helpful for people to answer if you share what type of MDS he has. What is his blast count, and what lines are affected? I am glad you found us.

Zoe

January 2, 2008 at 5:10 pm #19942

jaxem
Member

carolyn
please share with us the sub-type of MDS and heart failure diagnosis description. my wife also developed secondary MDS from chemo given following breast surgery. Isn’t it great that you can develop a worst disease after being treated for another?!! We’ve got a long, long way to go in treating cancer.

January 7, 2008 at 10:13 pm #19943

gj
Member

Carolyn

Yes your hubby joins a group of us who jump from the frying pan…
What kind of NHL was he treated for? Also did he do an auto or allo BMT?
I was dx with mantle cell in March 05 and had my bmt in Nov 05. All went along well until March 07 when up pops the MDS. I have been and continue to be treated ever since. Started with one round of Vidaza which failed me and then have undergone 6 rounds of Dacogen and am doing prety good. My only other issues is varying levels of fatigue.
Keep us up to date on your husband’s progress. Also if you have any questions you’ll find this board friendly and helpful.
Wishing you the best
greg

January 17, 2008 at 2:20 am #19944

jas174
Member

Hello Carolyn,
It looks as if it is common to develop MDS after previous chemo. Like Jack said, the original disease treatment causes a worse disease! My husband had NHL, was treated with CHOP and a few years later developed MDS. That progressed to RAEB, then to AML. He is doing well, recieving treatment, waiting for a BMT in the spring. It looks like you found the right place for support and information. There’s great, caring people here. All the best to you and him! Prayers coming your way. jas

February 3, 2008 at 6:45 am #19945

LarryCA
Member

Similar situation here: Wife had an auto SCT for AML in December of 2002. Clean annual BMB’s each year and then after her test this past December, her doc called and said that the cytogenics report indicates she may be looking at MDS somewhere down the road. Our next regularly scheduled labs is in two weeks. Keeping fingers crossed for good CBC’s etc.

All the best to you guys.
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