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Prognosis

This topic has 3 replies, 1 voice, and was last updated 18 years, 11 months ago by Gorgi.

Viewing 4 posts - 1 through 4 (of 4 total)

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June 1, 2005 at 3:37 pm #6569
Gorgi
Member
I have just been diagnosed with MDS. My daughter led me to this site and this is my first posting

At this time I don’t know what type of MDS
My age is 73, I am very fit physically and ohterwise in excellent condition. I currently am able to swim, (slowly), a mile three times a week and can easily walk for two hrs or more. I used to run but that is now a no – no

I would apreciate some comments on the likely progress of the disease and the prognosis.

My current hemoglobin count is 9.6; RBC 2.6; wbc 4300; platelet 133, 000

Thanks for any response. scottgr@shaw.ca
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June 1, 2005 at 5:38 pm #6570

Vasilios2
Member

Welcome! Key question is how you feel not only the numbers. Also the classification of MDS. But again from several conversations that I had with my father’s docs they all tell me that if he feels good that is the important thing. You “sound” great. Do not give up and live your life to the fullest. It sounds that you have many years ahead of you
Good luck
Vasilios

Father (78) diagnosed with MDS no blasts. Doing well no treatments, no chromosome abn

June 1, 2005 at 6:34 pm #6571

Suzanne
Member

gorgi, the key is what type of MDs you have and your ‘risk score’. Some types are much easier to live with and control for long periods of time then others. Your Hemotologist should give you tbis information. The second important issue is to go to a hemotologist that has a lot of experience with MDS or even better a “center of Excellence” for a more accurate prognosis and for advice on what if any treatment might help. Many local doc’s will “write off” a patient of 73 with supportive care only. There have been a lot of advances in treatments in the past few years and some healthy 73 year olds are now responding to treatments. You want to be sure you know what your alternatives are so you can make good decisions for yourself. I hope you have one of the less serious types but people here really can’t give you the benefit of their experience without more information. Neil has a great list of questions to ask when you are first diagnosed. I sure he will send it to you when he sees your post.

June 1, 2005 at 9:12 pm #6572

Gorgi
Member

Thanks very much for your prompt reply. It is appreciated.

George
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