I was diagnosed about a month ago and am searching for answers about treatment. I received a 2nd opinion which confirmed my diagnosis. I understand I have a “good” MDS but am confused about tx vs watch and wait. I have received 3 Procrit shots and 1 Ananesp (CO Cancer Clinic) when traveling. Now my Dr. is rec. Revlimid. After researching this drug I was less reluctant to start it. Besides the cost, it seems the side effects are nasty. My latest HGB was 10.1 last week. (I also have Thalessemia Minor which is type of anemia which causes my HGB normally to be in the 10s – it has never been above 11). Why can’t I continue with Procrit injections since they seem to help and just monitor my labs? I am also considering going to a Center of Excellence in Tampa to see their MDS specialist. The more I learn the more confused I become.
Thanks for any input.
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