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should i start vidaza treatment now?

Home Demo forums Patient Message Board should i start vidaza treatment now?

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  • #23749
    frank
    Participant

    i have suvived with MDS for 8 years, with blood transfusion. recently my transfusion period begin to shorten(1 month now). my Doctor want me to start the vidaza treatment, which i had a pretty rough experience 7 years ago(infection, drug reaction, stay in hospital for 15 days), but i do have some responce in the last try-out(free for transfusion for 6 month).

    since i am still young, so i decide to try it again. but some research i did last couple days, suggest me not doing it. someone have experience on the low-risk MDS?

    #23751
    admin1
    Member

    Dear Frank, Second opinions can be useful to evaluate the appropriateness of the treatment plan. A second opinion need not mean that you’re changing doctors, however; if you wish to seek the advice of another hematologist who has particular expertise in MDS, a second opinion can be very useful in helping you and your preferred doctor to fine-tune your treatment plan. If you would like to seek a second opinion, please contact the MDS Foundation at 800-MDS (637)-0839 and we can arrange a preferential appt. for you at one of our MDS Centers of Excellence.

    #23763
    frank
    Participant

    I began my vidaza treatment from April 1st, this week should be the worse one. I got blood yesterday, and will se my doc tomorrow. hope everything is okay.

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