Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

sibling match stem cell transplant

This topic has 11 replies, 1 voice, and was last updated 16 years, 2 months ago by deb m.

Viewing 12 posts - 1 through 12 (of 12 total)

Author

Posts
December 12, 2007 at 1:25 am #19848

deb m
Member

hi all,
looking for some positive feedback! my young 67-yo dad was dx with MDS RAEB I a few months ago. he is going in for a SCT wtih a 10/10 matched sibling next month. he has responded well to two rounds of dacogen. things are looking good. he is feeling pretty good and has a great attitude. any success stories with SCT?
thanks!
deb

December 12, 2007 at 6:56 am #19849

jaxem
Member

deb
he is very, very lucky to have a donor as 60% never find one. I am very happy for you and hope all goes well with his recovery.

December 12, 2007 at 12:16 pm #19850

deb m
Member

thanks, jack. i didn’t realize that so many never find a donor! i thought it was just a matter of time before one would be found if you didn’t have a siblling match. i guess he’s really lucky! he has three brothers and one was a perfect match.
deb

February 25, 2008 at 10:46 pm #19851

deb m
Member

just a quick update. my dad had the transplant about 32 days ago. he is doing very well so far. he is at the hope lodge near the transplant unit as he has to go in for infusions of magnesium and saline every day. his blood counts are looking very good. we are cautiously optimistic!
deb

February 26, 2008 at 12:11 pm #19852

hopenprayers4mom
Member

deb, my mom of 49 also had a transplant this month. stem cell to be exact. A mini tranplant because she was in remission at the time. Did your dad have a full or mini tranplant? Also what side effect did he experience from the chemo and does he still have any side effect 32 days? Its been two week after my moms transplant and she still has nasuea and some dirreah. Prayers go out to you, your father, and your family.

February 26, 2008 at 11:04 pm #19853

deb m
Member

hi Tamie,
i think my dad had the full transplant. i wondered about that, but they never said mini so i assume it was not mini. he did have some nausea and diarrea but that is gone now. they were able to control the nausea fairly well but the anti-nausea meds made him sleepy. he is doing well now at 33 days. he is just really really tired! and his blood pressure is low since he can’t seem to keep hydrated. they give him saline every day.
thanks for your prayers! i’ll pray for you and your mom, too.
deb

February 27, 2008 at 4:32 pm #19854

jaxem
Member

deb
i think your dad had the “mini”. at 67, going for an ablative would be horrendous for him. don’t get me wrong, the mini isn’t a walk in the park. the transplant part is the same for either but the difference is in the preparation prior to the actual transplant.

February 27, 2008 at 5:17 pm #19855

deb m
Member

i did wonder about that. he did two rounds of dacogen before the STC and he was down to 2% blasts going in. he did 4 days (i think) of chemo and his WBC got down to almost nothing.

he got his blood counts and BMB results today:
WBC 5.51
Hemo 9.9
Platlets 141
the stem cells have taken over 97% and his blasts are 1%.
so things are looking good. he is feeling pretty good but his blood pressure is still low and he needs infusions of magnesium and the saline.

March 1, 2008 at 6:17 pm #19856

jaxem
Member

deb
looks like he’s on his way, the right way. those are good #’s. good luck to him!

March 1, 2008 at 11:10 pm #19857

deb m
Member

thanks, Jack.
i keep watching for your posts and hoping that your wife gets her cord SCT. how is she doing with the dacogen and valproic acid?
deb

March 2, 2008 at 8:34 pm #19858

jaxem
Member

deb
just completed her 3rd round of administration. now we wait about 3 weeks & do a bmb to see if this protocol worked or not. the VPA is at the highest dose for the drug; made her very tired. after the nadir, counts should rise in about 2 weeks. keep us up-to-date on the progress of your husband.

March 5, 2008 at 2:44 am #19859

deb m
Member

hi Jack,
i’ll be praying for some great news for your wife in 3 weeks. a few percentage points is not too much to ask!
my dad (not husband) is doing very well at the moment. his doctor says he’s one of her best patients. we feel so very very blessed to have him doing so well!
deb
Author

Posts