First, he is being transfered to Loyola when a bed becomes available. He will have a different primary doctor and a hemotologist who actually sees him. That is good news. I also spoke with Kathy and we went over his medical records and discovered a few things. He is RCMP under the WHO classification. No blasts, and his main problem right now is the hemoglobin. He is being treated right now with aranesp, weekly, not biweekly. He has some iron buildup problems and the 2 recent transfusions probably don’t help that situation.
I want to say that unless I had sought help via the internet, I would not have been able to make heads or tails of any of this information, so I am very grateful for all the assistance; Neil I understand why everyone missed you while you were gone for a while. Sounds like you and my dad have a lot in common medically (MDS and Diabetes II). I will look into contacting the doctor you recommended and I am learning much from the info you sent me.
It is frustrating for me when we (Kathy and I) were so careful to take the time to ask his prim. doctor pertinent questions in writing and orally and to have her say, “I don’t know, ask the oncologist [who hasn’t actually seen my dad in over 6 weeks]”. Then, lo and behold, we find many answers ourselves by combing through his records. I would just think his prim. doctor would have read them as well.
Please keep my dad in your prayers and hope with me that the experience at Loyola will be better, one with open communication and that the best interest of my dad will be served.
Blessing,
Karen
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