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swelling and absesses

This topic has 7 replies, 1 voice, and was last updated 16 years, 11 months ago by annie-anne.

Viewing 8 posts - 1 through 8 (of 8 total)

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June 1, 2007 at 11:05 pm #18452

annie-anne
Member

First post,
Has anyone had swelling or lumps associated with dacogen?

June 2, 2007 at 12:41 am #18453

jaxem
Member

annie

my wife had some recent swelling in her neck glands which the hema thought was viral.

June 2, 2007 at 4:21 pm #18454

Carl
Member

annie-anne,

I took Dacogen for 7 months and had no problems with swelling or lumps.

Best tell yor Dr. as soon as possible.

June 4, 2007 at 1:46 am #18455

jaxem
Member

carl
you went through about 42 weeks with the 7 rounds then. any bmb’s in between to check if dacogen was working or not? have you had any regimens of chemo prior other than thalid?

June 4, 2007 at 2:01 pm #18456

Carl
Member

Jack,

When I started Dacogen they did a BMB and I had less than 5% blasts and my diagnosis was RA. They did BMB’s every 3rd round. They showed no improvement, then after the last BMB I had 12% blasts and my diagnosis was RAEB2. Sadly, I have since progressed to RAEB-T, transforming to AML.

June 5, 2007 at 12:29 am #18457

jaxem
Member

carl

i’m sorry you came up short on that long therapy. you’ve been fighting this ugly disease for so long. are there any standard chemo regimens under consideration? i hope you get a break on whatever route you select for the future.

June 5, 2007 at 7:49 pm #18458

Carl
Member

Well Jack, when I get leukemia they can treat it with some serious chemo. but I’ll have to be in the hospital for a couple of weeks. Then there is no guarantee the chemo. will put me into remission.

But the best I can hope for is remission from the leukemia which will put me again in the MDS category, RAEB-T. Just like a (#@*!) merry go round.

June 7, 2007 at 2:22 am #18459

annie-anne
Member

Thanx to all who answered. I was finally dx with Neutropenia, a comp. of lo WBC of MDS. which gave me some mucous membrane swelling. Better now, after a short hosp stay. I’ve had 25 Dacog.treat. and am awaiting my 6th series. It’s good to hear of so many doing well after 6 series. Maybe I’ll be lucky. Good thoughts to you Carl. It’s a merry go round and a roller coaster ride at the same time, but I’m very thankful for Dacogen at this point.
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