Symptoms and and how fast can MDS transform to AML

[fotis]

Hi all

I don’t know if my signature if visible with the new forums, but brief history is i am a care taker for my mother, who diagnosed with MDS-RAMD six years ago at age 51 (2 BNB performed because of low whites). These 6 years, all the results from blood tests were good, nothing was below minimal levels at ANY point.

1.5 week ago though, she started having something like a swollen throat and pain chest, also BIG fatigue after walking. 3-4 days later she started having muscle cramps (at the bottom of the back) and bone pain on the whole body.

The strange thing is she had a blood test (also checked liver, cholesterol, etc) 3 weeks ago and everything was normal again.

So i may just thinking the worst case scenario, but these symptoms are something to worry about? Also could we go from healthy/good readings to bad/AML in such small period of time?

We will not get new blood readings until next week, and i am losing my mind thinking about this, so any advice would be more the welcomed?

PS English is not my language so sorry for any errors.

[Niels Jensen]

For many MDS patients the illness will never transform to AML. My doctor here in Denmark keep telling me, that I am still fit enough for a transplant. He monitors me through blood tests every 2-3 months. This he feels is sufficient to catch any change early enough to find a suitable unrelated doner.

Could the muscle cramps possibly be related to an infection?

Regards, Niels

[fotis]

i really thank you for your reply, it was really encouraging and helped me the last couple of days.

i am hoping for just a virus, although since yesterday she developed skin rashes… we are in despair.

tomorrow will get the blood results. i hope for the best.

[Author]

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