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Terri

This topic has 19 replies, 1 voice, and was last updated 17 years, 10 months ago by Naomi.

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June 12, 2006 at 4:59 am #13413

patti
Member

Hi Terri,

I have not forgotten you! I am still looking for another source of the bone marrow supplement that mom takes. I’m going to call one more place tomorrow and see if it’s available there. I’ll get back to you when I find something out.

Patti

June 18, 2006 at 8:53 pm #13414

Terri
Member

Thanks Patti, Bob has had a severe relapse, Subq Brain bleed (Lining of the brain, it is not active right now but surgery is not an option as far as we are concerned too many risk – Plts make his blood too thin.

June 19, 2006 at 12:35 am #13415

patti
Member

Terri,

I’m very sorry to hear this. Low platelets is such a hard thing to deal with. Do they have him on Amicar? Is Bob on a watch and wait right now or are they still going to do the Vidaza? How are both of you doing with all of this? Hang in there.

patti

June 19, 2006 at 3:50 am #13416

eve
Member

terri

sorry to hear bob is having complications- keep up the hope that things will get better –

my dad has had many months where he couldn’t take treatment because he had bleeding – ulcers, urinary tract infections, kidney stones

good luck

eve

June 19, 2006 at 3:57 am #13417

Naomi
Member

Terri:
Wondered why I hadn’t seen you on the forum lately, so now I know. I am sorry about Bob’s problem and hope it all clears up shortly.
Take care
Naomi

June 19, 2006 at 1:54 pm #13418

shirlsgirl
Member

Hi Terri,

I also wondered where you’ve been and hoped that everything was okay. I’m so sorry about Bob’s setback. Hoping he improves and is feeling better soon.

Take care,

Jody

June 19, 2006 at 6:40 pm #13419

Jack_dup1
Member

Terri,
So sorry to hear about Bob, this disease is so full of hills and valleys, hang in there, I admire your strength, I’m sure at times it’s challenged to the max.
Jack

June 20, 2006 at 12:14 am #13420

Terri
Member

thank you all, it has been a roller coaster, I have been getting so much support from forum friends. I fear so much and Bob is being so strong and inside I know he is very scared.

The doctor will wait a month before he sees about starting the Vidaza again. I have so so many concerns.

June 20, 2006 at 11:49 am #13421

Marsha
Member

Terri,

I have moved Bob to the top of my prayer list. You and Bob have been much support to me and many of us here. I pray that Bob rally’s from this set back. How can one not be scared? I pray that God will grant you the strength and will to get thru this rough time.

Marsha

June 21, 2006 at 12:57 am #13422

CarolineG
Member

Terri,

I am sorry about Bob. Hopefully, things will clear up and he can continue on with his Vidaza plan. I hope he feels better very soon.

Blessings,
Caroline

June 21, 2006 at 5:15 am #13423

gemloyear
Member

Terri, Glen had a brain bleed (stroke) 2 yrs. ago. He had short term memory loss and trouble processing numbers and difficulty speaking.He recovered pretty well as far as his speech, never fully with memory but quite well for his age. The bleed resolved and has not returned, thank God.There is hope Terri. You have worked so hard to keep your husband well,you are a wonderful caretaker.We all appreciate your support on this forum. Bob and you are in our prayers.
Ellie

June 21, 2006 at 7:07 pm #13424

SusanJ
Member

Terri,

I am praying for you and Bob. My daddy’s name is Bob! How is he doing today? Did the Vidaza cause his brain bleed? My dad is supposed to start Vidaza in another month. I know that there are risks involved with anything, we’re very scared.

Susan

June 22, 2006 at 12:05 am #13425

Terri
Member

Susan it was the Low plts that Made the brain bleed in the lining. Ellie gives me hope that this can resolve itself. Bobs WBC were off today I am hoping it is a fluke again. We see the doc next week. He is planning to do the vidaza again but wants Bob off for a month.

June 22, 2006 at 6:14 am #13426

patti
Member

Terri,

Hang in there. Have you talked to Bob’s dietician about adding Vit. K to try and help resolve the bleeding? I also remember Dee mentioning Amacar as a possibility to help keep bleeding from happening when platelets are low. Maybe Bob’s doctor would have some thoughts on that.

You know, Bob knows his body better than anybody and maybe it would be good for him to have a rest. If he only wants a month off perhaps the doctor would agree to give him time to recover from this latest set back.

Hang in there. This is a difficult time. Praying for you and Bob.

Patti

June 22, 2006 at 10:45 am #13427

eve
Member

hi terri

i hope bob rebounds from this latest setback real soon

in reference to the wbc (which we too watch like a hawk)-do they adjust his count to allow for nucleated red blood cells – i know i have mentioned this in previous posts-if his nrbc is high the wbc will be recorded higher than it actually is-my dad’s counts have been in the high 20’s and the doctors are not overly concerned – dad has been back on treatment for 2 months (had to take a break because of complications)-3 days 80 mgs every 4-5 weeks -the jury is still out as to whether this will be adequate, but the side effects are definitely better

good luck
eve
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