THALIDOMID

[VIOLA]

Hi, I have a question: my Dad has been on Thalidomide for 1 month (he is still). On the beginning WBC were very low (1,9), now-2,5. RBC are still low and Dad is transfusion –dependent. I want ask You when You saw the improvement in Yours treatment: after 1 month, 2 month or more?
Second question is: the side effect are troublesome: the legs go to numb and swell (I’ sorry I don’t know how can I translate it?). He also has heartburn at night and strange stomach pain sometimes. Dad’s doctor advised him to take vitamin B6. Have You any experience with Thalidomide? Thank You for answer and best wishes, Viola

[Chiparoo]

Viola,

What your dad is feeling in neuropathy. I was on Thalidomide for one month and suffered from this side effect. My oncologist took me off the medication immediately. The neuropathy, in some cases, in irreversable. This is unfortunate, because I was showing signs of improvement with the drug. Revlimid is the “replacement” for Thalidomid. It’s suppose to have fewer side effects. There are FDA issues at the moment that are keeping it from being released until after the turn of the year. This could be an option for your dad. Good luck!

Chip
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48, Dx w/ RARS April 03. Long arm of chromosome #20 missing. On B6. Unsuccessful month w/Thalidomide (severe neuropathy) Jan 04. RAEB discovered after 4th BMB in Aug 05.
2 rounds of Vidaza, Weekly Procrit. Neulasta as needed. Found bone marrow match and donor. Waiting for transplant date.

[Author]

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