MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • #19533
    jules
    Member

    Thank you for all the helpful replies.I feel so much more positive reading all the information I have found on this site and realize how many questions I have for my haematologist;the only thing I’m finding confusing are all the abbreviations you guys use. I thought it was hard enough remembering MRS/RA [ha ha] something I guess I will have to get use to.The facts I do know is that I have a very high MVC [115] which I think are large immature red blood cells and both my bone marrow aspiration and biopsy show I have MDS/RA ,as for blasts etc I really don’t know.To be honest I think I was in shock when I was told back in July and have only just started to think I must learn all I can.Thanks again

    #19534
    jga_socal
    Member

    No prob. My notes indicate that MVC is the avg volume of your hemoglobin. Normal range 80-97 ml3. Screwed up hgb cells tend to be larger. My MVC has varied between 100 and 116.
    See Lab Tests Online – CBC to get the full poop on understanding your CBC results.

    Re stem cell transplantation, see the National Marrow Donor Program , a US organization. In the UK see British Bone Marrow Registry (BBMR)
    On the marrow.org site you can order a lot of free publications concerning Stem Cell Transplantation. But you might need to have a USA address. I am quite curious about transplantation centers and their success rates in the UK. But I’m not sure the BBMR publishes their outcomes like the NMDP does.
    Jim

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