Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

transfusions?

This topic has 4 replies, 1 voice, and was last updated 16 years, 11 months ago by krishananth.

Viewing 5 posts - 1 through 5 (of 5 total)

Author

Posts
June 14, 2007 at 6:32 pm #18550

lillian1919
Member

Hello
I am new to this site. My Mum will be 88 this year and has MDS, she was diagnosed 4/07. She has been having transfusions and Aranesp injections but this past week the oncologist stopped the injections as they were not helping. Now she is having labs every other week and transfusions as needed. She has been having ” spells” or “blackouts”. During the last transfusion last week she had 4 spells. Her BP drops and the transfusion had to be slowed/stopped. Has anyone had this experience? She has not had another spell since the transfusion.

June 14, 2007 at 7:05 pm #18551

Alice S
Participant

Hi Lillian
My mother had the same reaction this past weekend BP went haywire and she reacted to one of the units of blood, she had fever and chills.

Mom has had more that 80 transfusions in the past 26 months. Some times she feels very good, sometimes she actually feels as if she is becoming sick. So we now call it superman, good or bad blood – depending on how she feels afterwards. Mom is on Eprex (EPO) in South Africa but will stop because it hasn’t helped, actually she needs more transfusions.

Hope this helps, take care.
Alice

June 14, 2007 at 10:15 pm #18552

lillian1919
Member

Hi Alice
Thanks for the info, I am new to all this.
How is your Mum holding up? Is she is good spirits?
Of course there is a big difference is age, but my Mum is dreading the next transfusion. Just after I posted she told me she has had the “spells” and dizziness again today.
Thanks for writing – I am so glad I found this forum.

June 18, 2007 at 6:35 pm #18553

Teresa
Member

Lillian;

My Mom has been receiving transfusions for 3yrs, and just resently started having a temp and chills. They are pre-medicating her with Benadryl and Tylenol. That is working well, does make her drosy for about a day. You might want to ask about pre-medication.

Good luck

Teresa

June 19, 2007 at 10:51 am #18554

krishananth
Member

Hi

My dad too is transfusion dependent and has had nearly 20 – 25 transfusions by now. he just has a transfusion last Saturday.
earlier he never had chills but last saturday he had chills and the transfusion was stopped for an hour.

just wanted to know if the chills are indicative of non-acceptance of fresh blood or what is the reason for this?

Regards
Sandhya
Author

Posts