Urgent advice solicited

[JAYANTA BANDYOPADHYAY]

I am from India.
With due reverence, I would seek your quick cost effective Best treatment prognosis patient alert:
In 2012, I was detected auto immune disorder (AS), MDS, Uveitis and HypoThyroid and since completed 23 sessions of J & J’s Infliximab Remicade 300 mgs and last 24-25 sessions, I was put on Dr.Reddy Laboratories Redituxara and Ritiximab-1000 ml in March-April 2018. Since my platelet count hovers around 80000 now, now given oral steroid w/o much improvement- but definitely rate of deterioration is arrested.
Besides, Spine Surgeon has administered nerve root block injection at spine
Also under treatment of eyes and neuro.
This is very much expensive.
Kindly guide me as I am tired of fatigue and full body/joint inflammatory pain.
Unheard it is non curable.
Regards,
Jayanta Bandyopadhyay
146/2 Dewanagazi Road, Bally-Howrah-West Bengal 711201-24.10.2018

[mdsfound]

Dear Jayanta, Thank you for your post. We have two MDS Centers of Excellence in India:

Tata Medical Centre
Laboratory Haematology, India
Deepak Kumar Mishra, MD

Tata Memorial Hospital
Department of Medical Oncology, Parel, India
Purvish Parikh, MD

I would recommend that you seek a second opinion with either of the two MDS experts mentioned. If you have any further questions, please email me at patientliaison@mds-foundation.org.

I hope this helps.

[Author]

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