MDS is a bone marrow failure disorder
MDS is a blood cancer
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Vidaza

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  • #36446
    Beth Stanaland
    Participant

    Has anyone taken Vidaza for low risk RARS? Results? Side effects?

    #36449
    Philip Fallacaro
    Participant

    I have asked a similar question to my hematologist Doctors and they both seem to play down the side effects. But if you research the subject, you will find a broad range of side effects from little to a lot of physically uncomfortable effects plus changes in your blood chemistry, namely lowering of white count and possibly decrease in other critical cells. The hope is the drug will eventually cause the bone marrow to produce cells normally and eliminate blasts(immature white cells that can proliferate as a blood cancer. Speak to several doctors about your concerns. The tructh is, every case and body is unique with MDS, and you will only learn the side effects once you start the treatment. That is the RISK. Can the Vidaza help or possibly hinder your condition?
    Currently I am sataying away from the available drugs, hoping my condition stabilizes and gives me some time to consider potentially new, safer more effective drugs that are designed to treat specific categoriy classifications of MDS.

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