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Vidaza dosing

This topic has 2 replies, 3 voices, and was last updated 6 years, 7 months ago by Cecile Huston.

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October 3, 2017 at 10:14 am #33902

mt
Participant

My uncle has recently been diagnosed with very high risk MDS-MLD and is not a bone marrow transplant candidate because of his age. His current Vidaza dosing has been 3 days for cycle 1 and 5 days for cycle 2. Has anyone ever heard if this dosing protocol? He now has blasts in his blood even though he didn’t when he was diagnosed a couple of months ago. I can’t find any references for this chemo dosing and would really appreciate any help anyone could provide. Thanks

October 3, 2017 at 11:44 am #33922

garsch
Participant

I don’t know much about MLD, I had MDS RCMD. I do have experience with Vidaza and the normal dosing for my treatment was for 6 cycles. Each cycle was 5 days of Vidaza injections in the stomach, then 21 days off for 6 months. Regarding the stem cell transplant I am 66 yrs old and I had one in June. I saw several people at the hospital older than I that who were also getting stem cell transplants so I am not sure age really comes into play. That’s really a call by your Dr. but I would also get a second opinion.

October 5, 2017 at 5:55 am #33933

Cecile Huston
Participant

I was diagnosed in April with MDS, I have been on Vidaza since June, each cycle is 28 days, 2 days on a Thursday/Friday and then everyday the next week, I am also getting a clinical trial chemo twice a month, I am now on my 5th cycle, some numbers are better, I will be 75 in a few days and have chosen not to do a bone marrow transplant, the last bone marrow biopsy showed improvement. If I can keep the quality of life I have now, I will continue with the vidaza as long as possible. I know it is not a cure but giving me time. Everyone must make the right decisions for their own health and with the Dr’s imput as well. good luck.
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