Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Who is taking valporic acid?

This topic has 1 reply, 1 voice, and was last updated 16 years, 1 month ago by jaxem.

Viewing 2 posts - 1 through 2 (of 2 total)

Author

Posts
April 9, 2008 at 4:54 pm #20545

celebrations
Participant

Hi MDS-folks,
is there anyone who is experienced in swallowing
“valporic acid” the combination “valporic acid” and “Aranesp”.
PLEASE:
Can you tell me about the effectiveness there was, or there is – AND about the side effects.
I have read all I can about this stuff, still I feel not enough informed yet.
I will get the vpa in order to try to keep my HGB up and to keep me from too many transfusions.
I am supposed to be still low-risk-MDS.
Thanks a lot, Bergit

April 10, 2008 at 9:44 pm #20546

jaxem
Member

bergit
Guten Tag! I’m sure my spelling is incorrect but I’m trying.
my wife just got off doing 3 rounds of oral valproic acid WITH DACOGEN. I never heard of a leukemia/mds patient taking VA by itself. It was developed to “smooth out” mental patients. With dacogen, about 30% of leukemia/mds patients have gotten a response from the combo. Unfortunately, it didn’t do anything for my wife. aranesp is used to build hgb.
Author

Posts

Viewing 2 posts - 1 through 2 (of 2 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.

Welcome to the MDS Patient Message Board Post New Thread

Who is taking valporic acid?

Register for an account, or login to post to our message boards. Click here.

Login

Login

Login

Search Forums

Recent Topics

CONTACT US

MEMBER OF