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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • November 8, 2017 at 5:49 pm in reply to: Aranesp question #34480
    Marcia Briggs
    Participant

    I was diagnosed in August 2017. At that time platelet level was over a million. On Jakafi levels have stayed between 500-750. My problem seems to be on low Hgb counts…today it is 7.8 when I received a procrit shot…

    November 6, 2017 at 2:04 pm in reply to: Aranesp question #34456
    Marcia Briggs
    Participant

    No.Is that a complication of our disease? Your query is the first mention of it..My docs seem to be going in the direction of reducing the dosage of Jakafi. I started out with 20mg. 2x daily…My new prescription is for 5 mg 2x daily

    November 4, 2017 at 7:12 pm in reply to: Aranesp question #34391
    Marcia Briggs
    Participant

    I was diagnosed with MDS(RARS-T)/MPN. I too am having difficulty keeping the Hgb count above 8. I am on Jakafi and get procrit weekly…What is your dosage of Jakafi?

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