MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • in reply to: Hereditary Hemochromatosis with MDS #33661
    kathleen
    Participant

    Charlie, my husband has HH and was diagnosed with MDS in July 2007. Vidaza was the most successful treatment for the past 8 years and he was taking Jadenu for the HH. He transitioned to AML in June, just finished induction, 40 days inpatient, and now loking forward to bone marrow or stem cell transplant. During chemo he was off the Jadenu and his iron levels have not been elevated since. He never had therapeutic phlebotomy. He is 70 and otherwise in good health.

    in reply to: High Risk MDS/ AML #33660
    kathleen
    Participant

    Sheveta, they can now do half-match transplants with children as donors at some hospitals and also using cord blood. In the US there are non related donors, is this a possibility where you are? please consider moderator’s suggestions.

    in reply to: New Vidaza Patient #33432
    kathleen
    Participant

    Richard Wagner, my husband was given the same time frame in 2007! Vidaza has worked for 7 years, just recently not working any longer. He is entering a clinical trial at Johns Hopkins in preparation for a bone marrow transplant as his blasts have gone up to 17%. Best wishes to you.

Viewing 3 posts - 1 through 3 (of 3 total)

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