MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: 5q del being treated with Revilimid #44086
    Lesa
    Participant

    Hello, I was diagnosed with MDS in 2009, after 7 years of “watchful waiting” during which time I had a CBC every 3 months and my dr. was also focused on the hemoglobin level. It gradually decreased until June 2016 it was at 8.0. Super fatigued and also could not breathe. At that time I began Revlimid 5mg. I have the same forecast as you…stay on for the rest of my life (I’m a 59 year old female) or until it stops working. In the 2 years I’ve been on Revlimid my hemoglobin has increased back up to the 13’s! I also am 21 days on, 7 days off. No side effects, but thanks for the aloe juice for constipation suggestion. Best of health to you also.

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