[LZM]

Thanks Bob,

I went thru a round of IV’s (Ferlecit & Procrit) everything was looking good and now we are back again at weekly visits. My Dr. doesn’t think I need a transplant "yet". She thinks that is just a lazy bone marrow….the wait and the not knowing is very stressful.

Thank you again.

[LZM]

Hi Andy,

Thanks for all your help, ohhh and those joint pains I have had it for the longest and only blamed it on busy woman with busy life and 3 kids.

I am turning 33 this month. I have been anemic since I can remember always getting worst during pregnancies and since last november I started to feel out of breath if I took a shower so I visited my Dr thinking it would be my asthma and when she ran blood tests my hg was on 5.3 so I had a hospital stay and blood transfusion and since then an Oncologist has taken over my care.

They also performed a blood test and that was the test that indicated that they should look into MDS since the 20q was "deformed". After that a 1st Bone Marrow but it suggested MDS but "inconclusive", so the Dr. says that 2 test have kind of concluded the same so she will treat MDS in hopes a 2nd biopsy comes with actual diagnosis. The last tests I spoke about in my previous post were a 2nd bone marrow biopsy and blood tests. They injected me with procrit and ferlecit and my hg went up to 9,I was jumping for joy and escaped a hospital stay. And yes, I have to visit the Dr. every other week to monitor platelet levels and others.

My biggest concern is that I live in Puerto Rico and for what I can grasp is that they are stunned by my age and some tests that came back saying that my iron intake is 0.0, my iron level is that of an old person and platelets are some days up and other days way down. I feel like they don’t know what to do with me or my case.

I will be taking my trip with husband and kids to Disney next week and when I return, I have scheduled an "off the record" second opinion. From there I will decide and see if I should relocate.

[LZM]

Thank you so much for all the info. I am right now waiting for Thursday 7/7 I will be admitted to get more tests done and see the results.

[LZM]

great! I hope mine is as quick as yours. I was JUST diagnosed less than a week ago and I don’t seem to find information on "my category" (I’m 32yrs & female).

Hope all goes well.

[Author]

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