MDS is a bone marrow failure disorder
MDS is a blood cancer
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Viewing 3 posts - 1 through 3 (of 3 total)
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  • in reply to: MDS Patient Commonalities #16834
    Lizy
    Member

    What about the possibility of Radon wxposure(even though it is removed, and a ventilated system is installed the house?) We are moving to Colorado and they live with this type of stuff, however Colorado is known to be one of the healthest states in the country where people live long, as well.

    in reply to: My recent diagnosis #17525
    Lizy
    Member

    Chuck,

    I’m still at the stage of truly finding out my actual counts, initials (for a lack of a better term), etc. I have been told that I have Macrocytic Anemia which can then result into MDS. My doctor took about 9 months of trying everything before he finally dx me with mild MDS. I am now going to MDAnderson in Houston tomorrow to get the “full” picture, and I can then post it on my member information. I can tell you that I’m 44 years old with no symptoms. I currently am taking an iron supplement and B12 shots months to help support the bone marrow. I know at this point I’m blessed to be at possbily the most early stages of this, so it can be monitored. I presently live in San Antonio, TX. We hope, God willing to move to Evergreen, CO in mid June. I’m a bit concerned about the altitude affecting my anemia and another posting member who mention uranium. I plan to discuss this with the doctor at the MDAnderson.

    in reply to: My recent diagnosis #17523
    Lizy
    Member

    June,

    Since I was recently diagnosed and only going to a Center of Excellence tomorrow, I wouldn’t really have an answer for you until next week. However, I can say that I feel blessed that in the Center of Excellences there are Specialist who treat for ONLY MDS, whereas a hematologist works with different diagnosis. I just feel at this time, I will be getting the most cutting edge information since Centers of Excellences are “RESEARCH” driven. I’ll try to remember to respond next week on my experience.

    Lizy

Viewing 3 posts - 1 through 3 (of 3 total)

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