[Relaxson]

Thanks Suzanne re:his diagnosis I know he has elevated white blood cells 40,000 and blasts. Everything is pointing to his exposure to Agent orange in Vietnam he was also a painter by profession. Lovely what chemicals can do to us!

[Relaxson]

Hi Everyone.. My dad just got back from the doctor. His formal diagnosis is myeloproliferative II non-specefic His white blood cell count has almost doubled. 23,000 to 40,000 this week. The doctor is going to try the vidaza again fo a week and see if it will slow the cells if it does they will continue if not they will look into the hard stuff. Does anyone know of any other trials that are going on in the texas area? San Antonio or Houston?

[Relaxson]

Suzanne. Great advice! It is very hard to wait for sound advice but usually that is the best thing! Its amazing that we can love a doctor and trust everything they say and do until they say..”sorry we just have to sit back and wait and see” all of a sudden we start to question his ability. Can’t they just fix everything! Remind me of this great advice if I start to complain about the waiting game

Kristy, My parents have not went to MD Anderson as of yet. They have had excellent treatment from a doctor in Round Rock and haven’t felt the need. However, my father is grasping at all avenues at this point. I will have to share Suzanne’s words of wisdon with him and maybe he can sit tight for a bit longer.

Best to all
kara

[Relaxson]

Kristy.. Thank you for your kind words. Sorry to hear of your fathers sudden passing but I’m sure he is with you both!
Its wonderful that you are there for your mother. I wish I could live closer to my parents to help out. (I think the 15 phone calls a day makes it feel like I am) LOL (Mom ya know you would miss me if I didnt call
Have they given you an idea of when they are going to do the decitibine trial? What is this medication used for? Has she tried the Vidaza? I haven’t learned all of the different MDS and medication uses yet.
Good luck to you both! Keep me posted.
Kara

[Relaxson]

Wow I am impressed my mother figured out how to use her computer!
Welcome mom hopefully you can share your story with others on this site as they will theirs. I’m sure you will find others that can offer advice and that have shared your same experences.
Kara

[Relaxson]

I will have to ask my dad on all the HX so I can have a signature too. He is being treated in Round Rock, TX his doctor is wonderful!

Thank you everyone for such a wonderful welcoming! I’m trying to get my mom on line from Austin as well so look out for her

Kara

[Relaxson]

Thank you so much for your information. My dad take a lot of vitimans also have you heard about the B17 (apricot seeds) That will be his latest try. I just ordered them for him.

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