MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: 2 year Anniversary approaching #3661
    Tara R.
    Member

    I understand that there are, I think 5 different classifications, however when I asked my doctors, they told me that I would be classified as hypoplastic MDS. Hope that I was able to answer your question

    in reply to: 2 year Anniversary approaching #3659
    Tara R.
    Member

    I had to create a new Member Name…lost password for old screen name!

    Thank you so much for everyone’s support and responses to my 2-year Anniversary topic! It’s so nice to know that there are people out there who understand.

    To answer some questions…my WBC is usually about 1.7-2.0, RBC 1.9-2.2, PLT 14-24. I recieve two units of RBC per transfusion which boosts me up to about 10 and that’s as high as I usually get. Lately, however with the addition of disciplined excercise, I had a hemoglobin of 11!!! A new high mark for me since all of this began!

    Doreen~I just wanted to tell you that my doctors have encouraged a BMT. I cannot find a suitable donor. I am holding bone marrow drives in my area with the American Red Cross and National Marrow Donor Program. We have gotten a lot of people registered…over 1,100 new registered donors!!! Keep the faith..we’ll find us a match!

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