[B. B. Connor]

Hi Cristy, Welcome to this site. I went to M D for a second opinion and am glad I did as they suggested a blood test before trying Procrit It turns out I had too much “something” in my blood. Their second suggestion was Revlimid. I have been on Revlimid for 2 1/2 years now. So, You are in good hands. I use an oncologist in College Station becauseit is closer and not so much traffic.; however, My doctor took the advice of M D.
Best to you and your father as you begin this journey.
B B

[B. B. Connor]

Thank you, Catherine for your reply. It is comforting to hear from others with MDS 5QMinus. I had to keep asking my doctor to lower the dose to 2.5 mg. I felt the lower the dose, if working, would be less harmful to my body. My doctor was hesitant on the first, second, and third request. But it has been working well for the past year. Next hurdle is my insurance changes September 2017 and we all know how changing insurance companies can be. But God will provide. Blessing to you and the best of health

[B. B. Connor]

I am new to this. I was diagnosed with MDS 5Q minus 4 years ago. I have been taking Revlimid 2.5mg for the past year and a half. My doctor told me he has never had a patient with 5Qminus and never prescribed Revlimid at 2.5mg He prescribes this drug for Multiplemyloma patients but at a higher dose. I was started at 10mg, but had side effects and persistently requested my doctor to lower the dose. I went to 5mg and again had side effects. I am thankful to be on such a low dose now. I do have a few bouts of diarrhea monthly, but can manage with Immodium.
If anyone is on this low dose, please reply.

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