MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • Bonnie Condon
    Participant

    I have low risk MDS (diagnosed a year ago) and am currently dealing with Hgb at 8.4 and a low neutrophil count. I have been getting Procrit for 3 months. Just had my 2nd BMB Thursday to determine if something else is happening. I went to Walgreens in Illinois and had to sign a document that I had one of a variety of diseases. Bone marrow cancer was one of them. They didn’t require anything from my doctor, though my Hem Onc was supportive of me getting the 3rd dose.I got my 3rd Moderna vaccination and experienced similar side effects as the 2nd vaccination–aches,headache, nausea and no appetite for about 16 hours.

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