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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • February 20, 2019 at 3:51 pm in reply to: MDS with Sweets Syndrome, lung nodules #45145
    brook2016
    Participant

    Thank you so much for your prayers. I will be praying for you as well. MDS is bad enough…sweets is just making things so much worse. I’m so sorry you are having to go through it. If it’s not too late you can ask your doctor about colchicine As well. I read it is another drug that can treat sweets. I hope you get some relief and can get off the steroids soon!

    February 19, 2019 at 2:38 pm in reply to: MDS with Sweets Syndrome, lung nodules #45127
    brook2016
    Participant

    I have read that potassium iodide can work. We mentioned that to his doctor and I think they are going to try that for my dad. I’ll let you know if it is successful. Good luck to you as well.

    • This reply was modified 5 years, 2 months ago by brook2016.
    February 18, 2019 at 11:26 am in reply to: MDS with Sweets Syndrome, lung nodules #45113
    brook2016
    Participant

    Roger, were you able to get help for the sweets? My dad has the same thing. Steroid helped initially but has stopped. We are in Texas and no one seems to know what else to try.

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