Forum Replies Created
-
AuthorPosts
-
Bryan KrisherParticipant
Hi Sherry,
Thanks for replying!
I’m also sorry to you to for taking so long in replying.I haven’t had the BMT …yet.
Just a BMB or biopsy.
Early results of the biopsy showed no cancerous results.
It wasn’t until the very last result, which we waited for more than 6 weeks for, that the NDS showed up.
Dr keeps saying it’s a mild version, but on the hand he wants to jump to the aggressive treatment …go figure.
I understand that there many versions of MDS and, trust me, I’ll be finding out which type on my next visit with him on the 14th.Good center? …I believe it’s a good center …Presbyterian MD Anderson.
Although they don’t do BMT’s here in NM.
I’ve been told that will either have to go to Colorado, Arizona or Texas to have that done.Thanks for your advise!
Bryan KrisherParticipantPhillip,
Thanks so much for replying.
I’m sorry I took so long to reply back.
Yes, I had a BMB (biopsy) and early results did not show anything cancerous but we had to wait like 6 weeks for a final test and that is where my Dr. saw the so-called “mild” form of MDS.
My question to my dr will be …if it’s so “mild” why are we rushing into the “aggressive” treatments?
Yes, I am working with an Oncologist through Presbyterian MD Anderson Cancer Center.
I’m not sure if he is well versed in MDS.
He keeps telling me it doesn’t make sense and that him and other dr’s and even the pathologists are confused why I even have this. I don’t do anything that would have caused or brought it on.
Yes, I do know it can also show up random and out of the blue.
But then again, from what I’ve researched …nothing really makes sense about MDS or ITP.
I’ll post again after I go to the actual dr’s appointment.
I don’t see him at labs.
btw… had lab today
plate …29
hemo …8.1
So probably platelets and blood on Wednesday.
Are there other “important” numbers I should be looking at?
I mean I know they’re all are important, but you know.Thanks for taking time to reach out!
-
AuthorPosts