[camiboxer]

Well why didn’t they just say that? HAHA
Thanks Jeff, much appreciated. Your far more easily “readable” explanation should be the new norm.
Thanks again!
Thanks to you Katie as well for your support!

[camiboxer]

My dad is in southern/southeastern Ohio. PA’s center would be even farther for him. There is a center of excellence in Ohio, up at the Cleveland Clinic. That is our next option should we need and his current/new doc said that they work closely with one of the Dr’s there.

[camiboxer]

Jerry– Yes this was Dr. Blum. The package I requested that includes a patient diary arrived yesterday and I already charted all of the new numbers, starting fresh from today.

My dad lives in a VERY rural area. They don’t even have 911 services. The closest facility for blood testing is right around 45 minutes away. I am sure that this current Dr. will be able to put him in touch with someone closer IF the times arises when he no longer feels well enough to make the trip. (see the “IF”?, I have the power of positive thinking!).

For now it makes him feel better to plan on driving, he was a truck driver for 30 years and he loves driving. He swears that he feels totally “normal”. Much better than he did prior to his open heart nearly 6 years ago in 2000. I only pray that he remains feeling well. He has both of his church congregations praying for him as well as many family & friends. I have also asked my close friends to add him to their various prayer lists and we are all keeping the faith.

It is extremely hard to see a man who you adore and love so much show signs of dispair. I caught the smallest glimpse, a nano-second of something in his eyes today that crushed my heart. I lost my mom when I was 12, (I’m 39 now), and my dad is my everything. It really sucks to not be able to fix this. I know you all know how I feel.
Susi

[camiboxer]

We have no further info on his BMB aside from the initial diag. of MDS. Hemo/oncol Dr. visit Tuesday to get the rest of the specifics.

[camiboxer]

Thanks for your replies. I should have mentioned that he has Medicare Part A only and not B. I will have a better understanding once we speak with the Dr, I am sure.
I like to be as loaded with as much info as I can. I hate getting blind sided!
Thanks again,
Susi

[camiboxer]

The most recent CBC copy that I have of his tests show a platelet count of 209.0 with a reference range of 130.0-400.0. There is no H or L so I am *assuming* that at that time, (5/30/06) his platelets were ok. Definately going down however as I just located in additional set of test results from 11/05 and platelets at that time were 260.0.
He never takes anything for pain. He hates taking meds! The asprin is for his heart and carotids in addition to the Plavix. His cardiologist is ok with him stopping anything, saying that his most important medical issues take precedence. Tuesday can’t come soon enough.
Thanks for your responses.
Susi

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