[Clare Carter]

@sandyg yes thank you, I have been in touch with the UK charity and they have been helpful. We are a little more bashful about asking direct questions in the UK and it is hard to get answers around difficult subjects such as prognosis, hence coming to this site. Mum remains well, she is doing light exercise, seeing friends and family and coping well with treatment, which is the main thing. Best wishes to you

[Clare Carter]

@Rosemary, she is managing really well with the Azacitadine, she takes laxatives and anti emetics and they seem to mitigate most issues.She has some joint pain, but it is unclear if this is treatment, disease or arthritic pain (the original reason she went) The dr has made it clear that there is a risk of progression to AML, but we are not there yet. Mum doesn’t need transfusions yet apparently, but again the dr has told us this will be part of treatment at some point. I am glad to hear that you too are well, but sorry to hear of the diagnosis.

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