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Charlie G
MemberHi Franm;
Your husbands condition sounds exactly like mine. I was diagnosed in Sept. 05 with RAEB-2. My levels were wbc 2.9, hemo 11.9, p 63, blasts 10%. Now after 4 1/2 months my latest tests are wbc 3.1, hemo 11.9, p 80, blasts 10%. This is with no treatment of any kind. It is extremely difficult to decide how to proceed. We are considering BMT, but its difficult to take that risk when I am feeling fine and have no limitations on my daily life. It would be great if we only knew how this disease would progress, but it seems no one can predict it. For now I am just taking a wait and see attitude. Best of luck.MemberHi Maggie
Was very interested to read your message. I was diagnosed with MDS in 9/05. Have had no treatment other than weekly blood tests.I have a brother who is a match for BMT. My latest blood tests; WBC 3.4, HMG12.8, P 67 are at a higher level than they were at diagnosis 3 months ago. Now I need to make a decision whether to go ahead with BMT or take a wait and see what happens attitude. Your long period from diagnosis to present is encouraging. Would like to know your type MDS and original blood levels and blasts. Best of luck to you in the future.MemberThank you to all of you who responded to me. It is nice to have people to talk with who are going through MDS too. I am preparing for a transplant in January. My brother is a match. I am looking for information of what to expect in the days & months following the transplant. I would like to talk with others who have experienced it. I have subscribed to BMT-Talk and located some additional resources. It is a difficult decision because I feel so good right now. I am glad to be a part of this forum. There is a lot of good information here.
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