MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Meeting with a hematologist/oncologist this week… #33807
    Shannon C
    Participant

    Hello everyone, I just wanted to give a quick update and thank everyone for their replies!

    The results of my bone marrow biopsy were apparently normal, and based on my doctor getting access to 15+ years of my bloodwork, I was diagnosed with something called Cyclic Neutropenia. It’s a relief of course since it’s a mild type, but since I didn’t go through the normal diagnosis process of having my blood drawn several times a week for 6-8 weeks it makes me nervous that something is being missed.

    I’m going to go in for routine bloodwork again in a couple of months, and based on those results I may wind up getting a second opinion. Thank you again for all of the support, and I wish everyone the best of health!

    in reply to: Meeting with a hematologist/oncologist this week… #33484
    Shannon C
    Participant

    Hi David,

    Thank you so much for sharing you and Alan’s journey! I’m so happy to hear that he’s lived a fulfilling life and decided to take part in clinical trials, and I only hope they will prolong and enhance the remainder of his years.

    I’ve been browsing some of the posts here, and they all have been so diverse. As you’ve said, there’s no clear pattern. I hope that someone will look at my lab work and give me feedback if it’s compared to what they started off with. I’ve done so much research already, but a real persons perspective vs clinical data might help.

    Thanks again for replying, I’ll post what the outcome of my appointment was soon!

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