MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: New to the journey of MDS #30640
    jennifer elmahdy
    Participant

    I am 40 years old and am 142 post-transplant and I am in remission.

    @cindy
    Miller and @rar
    Where are you in your post-transplant? Did you have treatment with post-transplant vidaza?

    in reply to: Want to talk……. #30639
    jennifer elmahdy
    Participant

    Hi Nativitie
    I am now 40 but was diagnosed with MDS at age 39. Whirlwind of second opinions at 3 different hospitals, all 3 recommended the bone marrow transplant “allotransplant”.
    Finding your donor is the first priority. Then finding the hospital and doctors you are comfortable with. You are young and can make it through your transplant. I will tell you that it is not easy. I was hospitalized for 30 days and it felt like a prison sentence. But with treatment gives you hope.
    Don’t give up, don’t settle for doctors or hospitals that you don’t feel comfortable with and gather around your friends and family for support. I have relied on them more than I ever thought imaginable.
    If you have further questions, don’t hesitate to ask.

Viewing 2 posts - 1 through 2 (of 2 total)

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