[Rosemary]

The doctor now says that because of the TP53 gene the intensive chemo won’t work and so I’ll go on vidaza and venetoclax which will keep me going for 12 – 15 months. What is the end like?

[Rosemary]

Hi Clare,
I’m 72 and had the same diagnosis recently. I had the blood test because of extreme tiredness but now with regular transfusions I’m quite well and functioning normally. My doctor is expecting to see a progression to AML at my next bone marrow biopsy and it’s all downhill from there apparently. That may be what they’re expecting with your mother. I’m not having medication yet and frankly I’m wondering whether it’s worth it as there is no cure. Is your mother having any reaction to the azacitadine?

[Author]

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