[daveb]

Hi Simplistic,
I trust all goes well with your appointment on Monday. The lack of information seems to be the norm no matter where in the world one is. As I have written to Geraldine I have adopted a wait and see attitude, as reading all the information on the Web means that one just becomes more and more worried.
I am certainly not looking forward to all that seems to be in store for me in the future but having an understanding partner is of great help,I feel extremely sorry for anyone out there with no one close to help them.
Good Luck
Daveb

[daveb]

Hi Geraldine,
I am sorry to hear of your partner’s diagnosis and hope that he gets all the treatment available and appropriate for him also that it is successful.
I too am from the UK (Midlands) and was diagnosed with MDS-RAEB 2 in June of this year. This followed an operation in January, subsequent anaemia and diagnosis following a Bone Marrow Biopsy in June.I was put on a watch and wait system and have to see my Haematologist again on Monday 23/8/2010.I wait to see what developments have taken place.
I am a fairly fit 65 year old man with few health problems in the past, the exhaustion due to the anaemia being my only problem symptom currently. In actual fact I have rarely felt better except for the tiredness after exertion.
At the time of diagnosis I was given very little information and it was only after reading every thing on the Internet about MDS that I found out it’s significance and managed to worry myself silly. I have now come to terms with the situation and hope for the best but who knows?
I wait to see what’s next in store on following Monday’s appointment.
All the best
Daveb

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