Glad to find this group. My 88 year-old mother was diagnosed with MDS earlier this year and has been getting Aranesp injections every two weeks since about April. Doesn’t seem to be helping from what I can see. She went from a transfusion every two months and now is needing them about every 7-9 days. I wonder how worth the injections are to continue? Even with Medicare she pays $400-$500 for each one! Her current doctor never communicates much with us; so finally decided to move her to where I live and changed nephrologist. Hopefully he will have more insight into her condition. It’s always been kind of a mystery. She also has stage 4 kidney failure and congestive heart failure. So her days are numbered but I want her life to be as fruitful and pleasant as possible with what time she has left. She does admit she’s kind of starting to get tired of the transfusions but it’s the only thing keeping her alive.
