MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Want to talk……. #30614
    Deborah Hodge
    Participant

    My mother is 83 and has MDS. She has taken procrit since August and the Dr. raised her shot from 40 to 60 about 3 weeks ago. Her red blood count stayed up after getting 1 unit and increased for 2 weeks in a row. However, this week it had dropped from 9.1 to 7.2. We are bewildered at how and why it dropped so quickly. She has suffered terribly from the side effects of the higher dose, but was willing to suffer because her hemoglobin was going up. What in the world could have happened.

    Discouraged

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