MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 2 posts - 1 through 2 (of 2 total)
  • Author
    Posts
  • in reply to: Deciding to end treatment #31922
    Wondering daughter
    Participant

    Unfortunately, my mother passed away on Saturday March 11, 2017. She fought for the past 6 years and just was not doing any better. She has complications being a “post polio” patient, a diabetic, and an MDS patient. Her last week was spent partially at Hospice House and then I brought her home Wednesday. She enjoyed her life, however, she was tired of being poked and prodded with no end in sight.

    in reply to: Progression of MDS #31551
    Wondering daughter
    Participant

    Question regarding progression, my mother has been diagnosed with MDS for the past 5 years. In the last year we wrote the from just using Procrit to Vidaza. She has had a years worth of Vidaza with no positive changes. In the past month her WBC have gone over 85.4. She was hospitalized for a week due to high WBC and low sodium. She has been put on a new oral medication Hydroxyurea 500 mg twice a day. We are discontinuing Vidaza but continuing the Procrit. Can anyone tell me what all this means? I want to make her as comfortable as possible but also need to know what is coming.

Viewing 2 posts - 1 through 2 (of 2 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert