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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • September 23, 2018 at 12:06 pm in reply to: 5q del being treated with Revilimid #44101
    Diane Dugan
    Participant

    Thank you Stacey. I see my doctor on Thursday and hope my labs are better this time. The fatigue is what bothers me the most. Hopefully, I will be back to normal soon.
    My best wishes to you too…..
    Diane

    September 20, 2018 at 9:25 pm in reply to: 5q del being treated with Revilimid #44097
    Diane Dugan
    Participant

    I have been on Revlimid 2.5 mg for the last six years. Just recently my hemaglobin dropped from 11 to 9. Doctor increased my dosage to 5mg and I have 10 more days left before another blood test. Very tired and short of breath again. Same symptoms as when I was first diagnosed with MDS Five q Del. Has anyone been on Revlimid for longer than this? If so, is it still working?

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