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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • July 25, 2005 at 2:05 pm in reply to: update #7821
    Dinesh
    Member

    Suzanne
    Iam glad that ZARNESTRA is working for you. You are beating statistical data for MDS survival. I went to Stanford (DR. Greenberg) for consultatin. He recommended ZARNESTRA and if tat do not work Indiction Chemo. My blast is 16% as per Morphology (Manual counting blast) from viewing BMB slides. Flowcytometry (Machine counting) indicates 9% blast. Dr.Please give me your opinion about ZARNESTRA and which test (Morphology or FlowCytometry) is more reliable.

    Dinesh

    July 14, 2005 at 2:10 am in reply to: Revlimid Questions #7413
    Dinesh
    Member

    I went to Stanford Univ. (DR. Greenberg) for consultation. My blast is 16 % from last BMB report. Dr. Greenberg recommended Zarnestra. If that does not work he recommended Inductio Chemo-therapy. Dr. told that for Induction Chemo you need to stay in Hospital for 3 weeks.
    Can you please tell me about Induction Chemo?
    and Zarnesrta.
    Dinesh Shah

    July 14, 2005 at 1:53 am in reply to: FDA Exjade Letter #7454
    Dinesh
    Member

    I signed for Exjade approval letter eventhough I am late signing.
    My Ferritin is 2530 after 12 blood transfusions ( 2units each). I am anxiously waiting for FDA approval. Thanks for taking the lead for letter.

    Dinesh Shah

    July 14, 2005 at 1:49 am in reply to: FDA Exjade Letter #7453
    Dinesh
    Member

    I signed the letter eventhough I am late in signing.
    My Ferritin level is 2530 after 12blood transfusions (2units each transfusion). Iam anxiously waiting fir Exjade FDA approval.

    Dinesh Shah

    June 22, 2005 at 12:38 pm in reply to: Revlimid FDA Review #6750
    Dinesh
    Member

    Please add my name for REVLMID FDA approval

    Dinesh

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Viewing 5 posts - 1 through 5 (of 5 total)

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