MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: New, Scared, Questions #37047
    Ellen Jenner
    Participant

    my name is Ellen. I was diagnosed last year DEC. I just turned 57. I have what they are calling Low grade primary MDS. On my reports it says MDS-RS-MLD It is only affecting my red blood cells so far. Hemoglobin is usually around 8.7. I have had only one transfusion that was in Dec. I get blood work and shots of Aranesp every 2 weeks.

    in reply to: Aranesp Injections for MDS #37042
    Ellen Jenner
    Participant

    Hi My name is Ellen. I live in the Chicago area. I was diagnosed with Low grade MDS-RS in Dec.2017. I have been on Aranesp injections since January 2018. I get 500mcg every 2 weeks and blood work also every 2 weeks. I have had only one transfusion and that was December 2017. my Hemoglobin usually is in the 8.7 range. I am always tired and do have leg pain, although I do not know if it is related to my rheumatoid arthritis.
    I started taking Yoga at the Cancer support center and it does seem to help.
    I was excited to find this site and am looking forward to the support it offers.

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