MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Exjade given for Iron Overload #27264
    Fatima Pasha
    Participant

    Hi Joyce,

    I have been on Exjade since November 2014, I take 1000mg daily. My ferritin levels had reached as high as 3,384. My results two weeks ago were 1600 and I haven’t had a transfusion since October 27, 2014; I use to need a blood transfusion every three to five weeks, I have had 23 transfusions between November 2012 to October 2014.

    To answer your question; despite the side effects my doctors feel that is the best for my organs.

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