MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: MDS 5q #46405
    Gail Goodridge
    Participant

    HI Bridgette,
    I was diagnosed a year ago. MDS 5q del. I’m on Revlimid and except for some fatigue and issues with constipation/loose stools I’m doing well. Right now managing that is my most serious concern.
    My doctor does not have much to say about long term prognosis. He just seems happy that the medication is working for now.
    I have spoken to people that have lived many years on this medication.
    Be well! Try not to worry.

    in reply to: Revilimid #46404
    Gail Goodridge
    Participant

    Try the Pan Foundation.

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