[Geraldine]

Hi everyone – we got a surprise today -just finished second round of chemo( 5 days aml 17 clinical trial) – was expecting a third and lots of complications eg infections as per last time. Anyway we were told we may not need third set of chemo and unless he’s getting infection he is coming out wednesday! never thought possible Then its bone marrow transplant wait. But anyway we are delighted didn’t expect a fortnight reprieve though will need to prepare for BMT.So message there not to assume chemo always going to be so bad. Sickness and feeling rubbish yes but without infection means massive difference. Sorry cant share more scientific advice but wanted to let you know worth being optimistic and positive. We were dreading this phase and its been ok.

[Geraldine]

Hello DaveB and Simplistic. I am so sorry I didnt reply to you both when it was so kind of you to take the trouble to write. I really hope you are doing ok? Beloved is now back in for second round of chemo on a trial called aml 17 He needs a transplant, his brother isn’t a match though. It’s been a rollercoaster 12 weeks – agree with you that a lot of the data on the web is very old and the prognosis stats are pretty much meaningless. We’re staying positive and the staff at the Royal Liverpool are being fantastic. Thank you again for replying.Thinking of you both. Geraldine

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