MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Nucleated RBCs #33546
    gloriaf
    Participant

    Hi, Janice:

    Well, the bottom line is that your disease is probably progressing and you’re definitely going to need really really good insurance. Hopefully, you have an excellent oncologist/hemotologist. Stem cell transplant is the only cure for MDS and if you’re willing to do it, you’ll want to start exploring that as soon as possible. My Kaiser plan teams up with City of Hope so I’ve got the best people in my corner. Alas, no donor match and I’m going downhill fast. Love my docs.

    in reply to: irractic numbers #33545
    gloriaf
    Participant

    Hi,

    Has your Mom had a bone marrow biopsy? I’m the same age as your Mom.

    in reply to: Progression #33544
    gloriaf
    Participant

    Yes, dry mouth and dry cough (at night). It’s from all the meds. I use Xylimelts and it helps tremendously. Got it on Amazon.

      For dry cough, I finally figured out that it was post nasal drip itching my throat. My doctor recommended that I switch taking citrizine (Zyrtec) from the morning to bedtime. Worked!

      Good Luck!

Viewing 3 posts - 1 through 3 (of 3 total)

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