MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: Transplant in 2 weeks #44934
    glynes
    Participant

    Wow. My heart and prayers go out to you and your family. For sure half matches are done but I can’t add anything about the fibrois complications.

    in reply to: New MDS Patient #44933
    glynes
    Participant

    Sorry to hear of your diagnose. This is pretty standard to do an evaluation. Might seem illogical but you have to be healthy enough to go through but not be so healthy that you don’t need it. What I’ve learned is if the risk of your condition is below the risk of the transplant, they will put you on hold. The reason is that the transplant is a very difficult process and there is a significant mortality risk. Understand that while transplant is the only known cure, it is also viewed as procedure of last resort because of the risk.

    I’d suggest before you go, you do some research looking at the process and risk of transplant so you understand and can ask good questions. Don’t overly focus on the risk statistics because they aren’t pure and many of those who go through have other health problems that complicate their outcome. In going for the eval you have to know you want the transplant because they will ask and you have to be committed. Of course you can tell them you need to time to think about it but it will come down to your decision if they are on board in doing the transplant.

    I hope this helps. Good luck with the evaluation.

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