[happycanuck]

Hi Chris- I agree that we don’t have weeks to burn and I always, diplomatically explain that I am asking because it reduces worry about the situation. In truth I just want to keep my name at the forefront of their minds so they don’t forget about me. My doctors and their receptionists are pretty understanding in Vancouver and here where I live. I did let them know that I wasn’t very happy about the mistake on the BMB and asked that the more experienced doctor in Vancouver do the next one. I don’t know if that will happen though. I am staying positive because I have always been that sort of person. I am learning a lot about myself through this, not to mention who my real supporters and friends are. We are gonna kick this, I have no doubt. Have a great evening and keep me posted on your situation as well!
Take Care.

[happycanuck]

Thank you Chris, for your response. I have just emailed both my BMT doctor and my Hematologist’s office here where I live. Their offices are closed today but I should hear back from them in the next few days. If I do not, I am calling them.
I agree with you that I need to be the squeaky wheel here and for the most part I am. When I forget to ask something, my husband usually does.
It was not explained how long funding approval would be for the AZA and I guess I should have asked that two weeks ago at my follow up appointment. We had just gotten back the day before from seeing the BMT specialist in a city 5 hours away and I was still dealing with everything he had said to us at that point.
All my blood counts are very low, I don’t appear to have an abnormal karotype or chromosome abnormalities, but my last bone marrow biopsy was botched and the myeloid panel was not done properly. I am getting another bone marrow biopsy done when the 3 cycles of Aza are done.
After reading your response I feel even more emboldened to continue my regular phone calls and emails to my various doctors. Thanks again.
I am not sure how I can get my donor search going any faster though. My brother and I have both been tested and we are waiting for the results. I had to redo the HLA typing test (no explanation as to why), and that was only done a week ago.
Are you also having a BMT? If you are, do you have a donor match yet?
Take Care and best wishes.

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