Forum Replies Created
-
AuthorPosts
-
May 30, 2022 at 2:19 pm in reply to: Stem Cell Transplant – Any tips or suggestions for after #58209ChristopherParticipant
Will,
I also toyed with the option of putting off the SCT. No one ever “advised” me to wait though. I was told by multiple doctors that the younger and stronger you are, the better chances of quicker recovery with less side effects. I was also told that each person is different with symptoms and levels and labs. When I was told that this is the only thing that could cure me, I decided to move forward with it. Like you said, the treatments and trials may only work for so long. SCT scheduled for July. 🤞🏻ChristopherParticipantI also have excessive sweating. But not during resting or inactivity. But it only takes the slightest exertion to get it going. Maybe even just walking up and down the stairs. Diagnosed with MDS 6/21. But I have been watching my WBC go down since 2015. Always been the sweating type. But it definitely seems more extreme now.
May 23, 2022 at 11:24 am in reply to: Stem Cell Transplant – Any tips or suggestions for after #58159ChristopherParticipantI am also preparing to undergo the Stemcell Transplant. Waiting on my date to be scheduled. (Sometime this July).
My match is a 10/10, so I am hoping that things go smoothly. I will be at Cleveland Clinic, so I qualify to stay at the Hope Lodge there with a caretaker for the “60 days after” rehab.
As for stats:
52 yrs old
Lower Risk
Starting my 8th cycle of Vidaza
As for comments from other people….I have heard of several people I personally know that know a friend or relative that has gone through the procedure and are doing extremely well.
As for it returning…I have not been told this. But, ya know, nothing in life is guaranteed.
Think positive. : ) -
AuthorPosts