MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Early on my MDS story 72 y/o woman #34689
    JACKLINE Lopez
    Participant

    My mother is 73 and recently dx. She’s dealing with high risk MDS and is recommended to start Vidaza. My siblings and myself are very concerned about chemo for my mom. Mom says that she feels OK only some palpitations and fatigue when humoglobin is in the 7. So far, she has received a total of 13 units of bloof since early Oct. Allan, what special diets or regimens are you following if any to help with your maintaining counts stable. If we can help mom do this without the chemo we go for it 100% rather than see mom suffer with toxic meds. Please advice 😔

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