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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • July 2, 2019 at 5:56 pm in reply to: New MDS patient #46965
    John Dunleavy
    Participant

    Hi,

    I have had an MDS diagnosis since 2015. So far I have had multiple blood transfusions as well as about 10 months of Vidaza. The Vidaza did slow down the MDS but eventually it sapped my strength and they took me off of it. Currently I am on Decedron to help keep my energy up but that is a a short term solution.

    General feeling is that within a few months I will need to go to skilled nursing/hospice but for now, I am pushing forward, planning vacations and just had a big 75th birthday party. I am very satisfied with the care and 5he plans so enjoying each day becomes my focus.

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