MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: MDS patient who stopped treatment #63209
    judyha
    Participant

    I’m sorry you’re dealing with this horrible disease and sorry your oncologist treated you like that. I don’t know anything about the healthcare in Canada but could you get a second opinion for a oncologist from a Center of Excellence? My thoughts and prayers are with you whatever you do.

    in reply to: Monosomy 7 not showing on second biopsy #63207
    judyha
    Participant

    I have had a third bone marrow biopsy and this biopsy showed no evidence of MDS but the doctor said I had aplastic anemia and has been treating me for that. My blood counts are pretty good now and he has been lowering the dose of cyclosporine. What I don’t understand is how can my first biopsy show Monosomy 7 and my next two biopsies show normal. I had asked my hematologist if that meant I don’t have MDS and he said he can’t totally rule it out. He can’t say 100 percent whether I do or don’t He said he has been treating me for aplastic anemia and I have responded which is good. It just makes me wonder why a biopsy isn’t an absolute. Does anyone have any thoughts? It just kind of drives me nuts thinking about it.

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